Do not let Hepatitis C get you down! You need to get a good support system around you! You need your family and friends. You need to also reach out to a local support group and if there isn't one in your area start one. That is what I did 6 years ago and we started with just two people but once the word got out we grew like crazy. I realized right then when I talked to the two of them I needed to be here starting this group. Out of almost 50 that had called me in one way or the other pertaining to Hep C.So I took off and 8 years later here I am.
And now for an update.
Here I am 17 years full of 17 Awesome Thanksgivings. Sure some are hard because I am having back lass of Post Treatment side effect. And Post 3 Strokes in less then 4 years. And having bam bam one after the other 2 this Summer and Summer/Fall. I have now found out after this last Stroke that I have need now for a Heart Surgery; Valve Replacement, Hole Closed and and Aneurysm fixed. I am facing it head one in some ways and in some ways no. I am Still Mother and Father to both of my youngest daughters, them both being teens now. Also having to give up a life of Trucking and working off Shore and to a Welders Helper and traveling all 50 States, with being a Housewife and a Mother and a few odd local jobs here and there. Finishing off with 5 year in a Union Automotive shop finishing off making $18.00 dollars an hour average. I now being in my bed 300 out of 365 days. Life I could say really sucks in the Physical form and emotionally. Yea I could say the 'Why Me' if I wanted. And out of 3 complete knee surgery's my first doctor put to big of a knee in and even though the second doctor tried his best to fix it so my right leg would go flat and be normal like my left that the second knee doctor did put me in me. Which is ok and done with no pain now. So power chair and I live life the best we can. Isn't much fun but I still thank God every morning when I come out of a dream. Anyways I thank God for every day And I thank God for the times I do get on here to post.an update with everyone. What I am saying is no matter what life has for us Hep C and all. We are human too. So why not us is another way took at it.... God has a reason for everything. I love you all . And now for the latest Hepatitis C information. I am waiting on my HCV RNA I am the waiting process on the blood test to happen then i will inform you more. I love you all and have very good blessed day. Best you can. Remember to smile at everyone you see in hopes they pass it on. HUGS BIG TIME!!!!!!!!!!!!!!!!!
Saturday, November 24, 2012
Saturday, November 17, 2012
Current and Future Treatment of Chronic Hepatitis C
Do not let Hepatitis C get you down! You need to get a good support system around you! You need your family and friends. You need to also reach out to a local suport group and if there isn't one in your area start one. That is what I did 6 years ago and we started with just two people but once the word got out we grew like crazy.
Thursday, September 13, 2012
Sunday, January 30, 2011
Tuesday, January 25, 2011
Indiana's Annual HepFest
Besides running a support group for Hepatitis C I put on a
HepFest festival once a year. We are starting to get things together for
this years event. We are in great need of donations to help fund the
stuff needed to put on the event. The event itself is a day filled with
lots of love and fun. We have live music, speakers, free blood testing
vouchers, food and lots of information about Hepatitis C. We also have a
KidZone for our little ones, with lots of games and much more. The
event is open 100% to the public. It is a day to give those of us
suffering with Hepatitis C a chance to get together and enjoy spending
time with others who can understand how they are feeling. We also have
this day to help educate the public about this disease. Our group is a
registered non-profit organization. So any donations that you send are
tax deductable. We totally depend on our donations to make this event a
go. So please find it in your heart to help us. Thank you from the
bottom of my heart!!! All donations can be sent to Christie Soaper/
Dekalb Medical Arts Building/ 1316 E. 7th Street/ Auburn, Indiana 46706/
in care of Cheryl Clark.. And you can call me for more information.
260-927-8180
Trying to figure this out!! (o:
Well I am on my second day of this blogging stuff. And still
can't seem to get things together. So please bare with me. If you have
any suggestions that would be greatly appreciated!!
Monday, January 24, 2011
HIP ON HEP C SUPPORT GROUP
Everyone have a great day!!!
Christie Soaper
CEO/Founder/Group Coordinator
Hip On Hep C S
Tuesday, March 22, 2011
Sunday, March 20, 2011
Sunday Afternoon. Hepatitis really on my mind.
Well
it's Sunday after church and I was touched by Hepatitis C by all sides.
Wow God is good. There was a gentleman there who's wife passed away
with Hepatitis C. There was a man there with Hepatitis C who has even
gone through a Liver transplant. And there was me who finally was able
to wobble my way back to church on my knee. God is so good the man who
just had the Liver transplant has not been to church in a while and I
haven't either and bam just like that God got us up with the strength to
be there. I feel so blessed to have been diagnosed with Hepatitis C and
to have started the support group and the other event's I have done in
hopes to bring awareness out to my community. I know God has done so
much to me when I look at the people I have meet since the day I was
diagnosed. I have meet some of the greatest people in the world with the
truest hearts you ever would want to meet. I have opened the eyes about
Hepatitis C I have meet folks who had never even heard the word
Hepatitis C and I have brought the word Hepatitis C to some who have
just plain oh ran from me in fear. That makes so sad when I run into
those kind of people. Now I know some just run from fear of the unknown
and then there is those who label it with a cooty factor. Then there is
some who run just because they have a closed heart that just doesn't
care. I have had personally a person run because they just didn't care
to find out anything about it and what do you know bam they called me
wanting to know more information about it because they were diagnosed.
God has a way of working with people I just know it. I immediately
opened my arms 210% with support because I was put here to be there for
anyone with Hepatitis C. That is my calling inlife. And I love it.
Through the good and bad. I know there is so many more who may read all
this and think why would anyone even care to learn about something,
labeled as a drug disease at times, that they never have to worry about.
but those of you who feel that way please watch it you or someone you
love or know may be the next one diagnosied. I hope not for your sack
but ir can happen to anyone. And I pray that there is some of you out
there who will read this whole blogsite and have a stigma on it. Those
of you please open your heart too because 1 in 10 people will know
someone who has this disease and that is alot. They do not need you to
stigmatise it they need you to take a moment to step back and say okay I
am here and I want to care and help you. And then those of you out
there who have this disease I hope and pray this blogsite will help you
alot in many different ways. Even if it's just reading the blogs I post
and or the blogs my children post(once I get that part straighten out so
they can have their page and own blog stuff) I pray I touch your hearts
with care and love from Hepper to another. Okay I will close for now.
Hope all of you enjoy the rest of your Sunday and get the rest you need
to get back at the work week and do it again.
Much Love,
Christie
Much Love,
Christie
Friday, March 18, 2011
Happy Day!
I
hope everyone is having a wonderful day! It is finnally starting to
look like spring is really coming. I am doing alot of work for our OPEN
OPEN HOUSE on April 15th. It is a Hepatitis C open house for the
community. So they can stop in and get informational pamphlets about
Hepatitis C enjoy talking to those of us who have Hepatitis C. Get a
refreshment and much more. There will be a KidZone for the little ones
so that the parents have all the time they need to browse the pamphlets
and talk. Please stop in and visit us. It will be at the Dekalb Medical
Arts building next to the Dekalb Memorial Hospital at 1316 East 7th
Street, Auburn, Indiana in conference room 303. I hope to see you there.
Everyone have a wonderful day!!!!
Christie
Christie
Wednesday, March 16, 2011
Hip On Hep C Support Group: Logan's story with Hepatitis C
Logan just saying hello. Trying to see if this works to adding another blog to my page.
Tuesday, March 15, 2011
Saturday, March 5, 2011
logan
hi
my name is Logan and I have Hepatitis C and if you want to talk to me
about what you are feeling then go ahead. Well I am going to tell you
about me life ok. So when I got detected with it I was a baby so I
really didn't know about it because when you are a baby you don't know
what's happens with you at that time. so when I knew I had it I was sad
and when I had my first shot I was out of it and when my mom picked up
my arm and let go of it it dropped back to the ground so my mom called
the ambulance came to get me and toke me to the hospital and put i.v. in
my arm and my mom could came back to the room until they were all done
with me and ever thing like that. My mom took pictures of me when she
was back there and if you were wondering how I knew about all this my
told me about it when we came home from the hospital. well I have to go
so if you what to you came talk to me at all.
Friday, March 4, 2011
Well I am here with a heavy heart today!
Today I started two new pages on here that really pulled at my heart
when I was writing them down. I live the life everyday. But to put them
down on paper for all to see was really hard. I love my girls and I
really think them being able to reach out in their own way about their
own feelings will be good. They both need it. Don't get me wrong I am
here for them daily no matter what the day brings. But them having an
escape to tell their feelings is got to be good. And I am sure that
there is alot of other children out there that need them too. So to all
that read this for you to help me get the website out would be really
appreciate. Thank you so very much. The only way this site will get
going is by word of mouth. and I need lots of that. Please help me reach
the young out there needing someone to talk to.
Well enough for now. My knee is killing me since my knee surgery and I am going to go to sleep. I will write more tomorrow. And work on getting the site out myself. Everyone have a great night!
Christie
Well enough for now. My knee is killing me since my knee surgery and I am going to go to sleep. I will write more tomorrow. And work on getting the site out myself. Everyone have a great night!
Christie
Wednesday, March 2, 2011
Still here
Well I have been out of commission since last Wednesday. I had my left
knee completely replaced. So I have been out of it for the most part. I
have put a call into my daughters liver doctor to see about the starting
of a website with live chat for the children of Indiana who have
Hepatitis C started. I really feel like starting this for children with
this disease and I also still am in the thinking and starting a website
with live chat for those children with parents with Hepatitis C started
too. I really need idea's if anyone has them. I also need a big prayer
for these idea's also. I need the right website owner to say yes we will
allow you to start two sites free. And really it could be the same site
with two different links on it. I am kinda stuck as to who to contact
to fulfil these needs. I am sure it can happen and I am sure there is so
many kids out there that need these sites to be there for them. I will
just have to start by calling sites to see if they will fulfil our
needs. So wish me luck. With your faith I am sure it can happen.
Everyone have a wonderful day.
Christie
March 2, 2011
Christie
March 2, 2011
Saturday, February 19, 2011
Support Group Febuary 2011
Well group was great I learned alot of new stuff and I think
others did as well. It was like a bunch of friends sitting around the
dining room table having coffee telling our life stories and getting a
few good laughs. There was hope in the eyes of some and still that long
away site in one. I want to always come out of group with everyone
hopeful and happy. But I know in reality that that may not always
happen. I will never stop trying though. The whole idea of starting and
running this group has been a big God inspired thing in my life. It has
given me meaning and drive to find a cure for this disease. I started it
not even having a clue of how to run anything like a group of any kind.
But I have learnt alot in the last 6 years. Heck it might even be 7
years. Time has just flown by and some memory too. (o: I knew there
were others out there that needed a place to come to be able to be with
others who knew exactly what they were going through to be able to meet
together and become one so to speak. Weather there is only one person
or ten just being able to be there for them is fulfilling to me. I see
such hope in their eyes at time that it only makes me stronger in my
walk with Hepatitis C. I want to only make the group grow and grow
because I know that there is many and I mean many more out there who
have this disease that need a group. And I know that there is alot more
out there then the ones that come to group because I have talked to them
on the phone and they are still afraid of the stigma on the disease
that they do not want anyone to know who they are. So they suffer
silently alone. It just hurts my heart to have this happen. And not only
is there those who will not come to group there is so many of the
people out there that do not even know that they have it. Because as I
have learnt in time studying this disease that some go on without being
detected. Some only find out by donating blood. They do not suffer from
any of the systems that some of us do. Like the flu like systems that
can at times be so awful they keep you in bed feeling to tired to move.
Or some do not find out that they have it til their Liver is in full
blown Cirrhosis. I really want to see the government make it a mandatory
thing for everyone to get tested yearly for Hepatitis C. So we are not
losing so many people to Liver failure. Passing that bill will take some
time I am sure but I will forever try to work on it. Even if I have to
go one state at a time. In group last night I found a couple of needs
that also need to be met. One Like I think I have said in past blogs. My
12 year old daughter who also has Hepatitis C ( contracting it during
childbirth ). Well I think we need a support group for children
suffering with Hep to have a place for them to go and connect. Maybe
this would have to be a website chat room based group. But the need is
out there. So that is something else I am going to work on. Anyone who
has input please post it. Also I think there needs to be a support group
started for those children who parents are positive with Hepatitis C.
To go and connect as well. So there is something else I am going to work
on. Well I will close for now.
Everyone have a great day! And remember to be happy in the moment because we do not know when and if the next moment will be given to us.
Christie
Everyone have a great day! And remember to be happy in the moment because we do not know when and if the next moment will be given to us.
Christie
Sunday, January 30, 2011
Need Donation Money for this years Indiana's Annual HepFest. Please!
I am trying to round up money
for this years HepFest festival. We are only funded by the public and we
are in great need of help! We are a 501c3 organization so your donation
is tax deductable. We are trying to reach the $2000.00 dollar mark.
That helps us with getting our speakers, food and other supplies needed
to put on a productive event. This event is to have a day for all those
suffering with Hepatitis to get together and have a enjoyable event to
be around others who are suffering with the same kind of terriable
disease they are faced with. It is also for their families and friends
too. But a great big part of this event is to educated the public! We
need to get the word out to the public about this disease to help them
understand what it is and how it can affect others and possible
themselves. It is to also help them to not put such a stigma on
something that is not a cotty factor but a fact real people with real
disease's have to face!!! So please if you find it in your heart to
give. You may contact me at 260-927-8180 or email me at ladytruckr1962@mediacombb.net . Hope to hear from you all soon. Everyone have a wonderful day!!!
Thank you!
Christie Soaper
Thank you!
Christie Soaper
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