HIP ON HEP C SUPPORT GROUP, INC.: September 2012

Sunday, January 30, 2011

Me and my girls at the HepFest

My cousin's booth at the HepFest

Donald Lefevra- A singer at the HepFest

This is only one of the Hepatitis C quilts.

If you need to get ahold of me

ladytruckr1962@mediacombb.net

Me and the Hepatitis Quilt. There is only four in the world.

Tuesday, January 25, 2011

Besides running a support group for Hepatitis C I put on a HepFest festival once a year. We are starting to get things together for this years event. We are in great need of donations to help fund the stuff needed to put on the event. The event itself is a day filled with lots of love and fun. We have live music, speakers, free blood testing vouchers, food and lots of information about Hepatitis C. We also have a KidZone for our little ones, with lots of games and much more. The event is open 100% to the public. It is a day to give those of us suffering with Hepatitis C a chance to get together and enjoy spending time with others who can understand how they are feeling. We also have this day to help educate the public about this disease. Our group is a registered non-profit organization. So any donations that you send are tax deductable. We totally depend on our donations to make this event a go. So please find it in your heart to help us. Thank you from the bottom of my heart!!! All donations can be sent to Christie Soaper/ Dekalb Medical Arts Building/ 1316 E. 7th Street/ Auburn, Indiana 46706/ in care of Cheryl Clark.. And you can call me for more information. 260-927-8180

Trying to figure this out!! (o:

Well I am on my second day of this blogging stuff. And still can't seem to get things together. So please bare with me. If you have any suggestions that would be greatly appreciated!!

Monday, January 24, 2011

HIP ON HEP C SUPPORT GROUP

We are a non-profit support group and organization for Hepatitis C. I started the support group when my youngest daughter was diagnosed. I had found out just four years earlier that I was positive for Hepatitis C. I contracted it in 1987 when my oldest son was born. I had to have a blood transfusion. And after having a C-Section with my youngest daughter she contracted it from me because of a cut she had on her head. Because Hepatitis C is spread from blood to blood. I knew I needed a support group once I was diagnosed and never found one in my area. And then once my daughter was diagnosed I knew the only thing left to to was to start my own support group. I had no clue what I was doing or where to turn. But with the help of my community and friends I got one started. Everything else just feel into place. At first some people were like what is Hepatitis C. But once they found out they were 210% open to the whole idea of me getting the awareness out and starting a group. Then like ants running to sugar the people with Hepatitis C came out of the wood work. Granted some of them do not wish to attended our monthly group sessions but at least they still reached out for phone support. So before you know it we became a non-profit organization. We also put on an annually HepFest festival for the state of Indiana ( surrounding area's are welcome). The whole event is free. We have live music, speakers, free blood testing vouchers for our local hospital, food and a KidZone, free informational literature and much much more! It is a day where we can all let loose and enjoy a day filled with people who understand what we are going through and also a day where we can educate the public. We also have a Hepatitis Awareness Day for the state. And reach out in every way you can think of to make sure the public is aware and has all the information they need to understand this disease. My goal behind this all is to find a cure for Hepatitis C and heal my daughter and everyone out there suffering with Hepatitis C right now. Please if you are in the area and have the time to make a meeting on the third Friday of the month look us up on the Dekalb Memorial Hospital website.
Everyone have a great day!!!
Christie Soaper
CEO/Founder/Group Coordinator
Hip On Hep C S

Sunday, March 20, 2011

Sunday Afternoon. Hepatitis really on my mind.

Well it's Sunday after church and I was touched by Hepatitis C by all sides. Wow God is good. There was a gentleman there who's wife passed away with Hepatitis C. There was a man there with Hepatitis C who has even gone through a Liver transplant. And there was me who finally was able to wobble my way back to church on my knee. God is so good the man who just had the Liver transplant has not been to church in a while and I haven't either and bam just like that God got us up with the strength to be there. I feel so blessed to have been diagnosed with Hepatitis C and to have started the support group and the other event's I have done in hopes to bring awareness out to my community. I know God has done so much to me when I look at the people I have meet since the day I was diagnosed. I have meet some of the greatest people in the world with the truest hearts you ever would want to meet. I have opened the eyes about Hepatitis C I have meet folks who had never even heard the word Hepatitis C and I have brought the word Hepatitis C to some who have just plain oh ran from me in fear. That makes so sad when I run into those kind of people. Now I know some just run from fear of the unknown and then there is those who label it with a cooty factor. Then there is some who run just because they have a closed heart that just doesn't care. I have had personally a person run because they just didn't care to find out anything about it and what do you know bam they called me wanting to know more information about it because they were diagnosed. God has a way of working with people I just know it. I immediately opened my arms 210% with support because I was put here to be there for anyone with Hepatitis C. That is my calling inlife. And I love it. Through the good and bad. I know there is so many more who may read all this and think why would anyone even care to learn about something, labeled as a drug disease at times, that they never have to worry about. but those of you who feel that way please watch it you or someone you love or know may be the next one diagnosied. I hope not for your sack but ir can happen to anyone. And I pray that there is some of you out there who will read this whole blogsite and have a stigma on it. Those of you please open your heart too because 1 in 10 people will know someone who has this disease and that is alot. They do not need you to stigmatise it they need you to take a moment to step back and say okay I am here and I want to care and help you. And then those of you out there who have this disease I hope and pray this blogsite will help you alot in many different ways. Even if it's just reading the blogs I post and or the blogs my children post(once I get that part straighten out so they can have their page and own blog stuff) I pray I touch your hearts with care and love from Hepper to another. Okay I will close for now. Hope all of you enjoy the rest of your Sunday and get the rest you need to get back at the work week and do it again.
Much Love,
Christie

Friday, March 18, 2011

Happy Day!

I hope everyone is having a wonderful day! It is finnally starting to look like spring is really coming. I am doing alot of work for our OPEN OPEN HOUSE on April 15th. It is a Hepatitis C open house for the community. So they can stop in and get informational pamphlets about Hepatitis C enjoy talking to those of us who have Hepatitis C. Get a refreshment and much more. There will be a KidZone for the little ones so that the parents have all the time they need to browse the pamphlets and talk. Please stop in and visit us. It will be at the Dekalb Medical Arts building next to the Dekalb Memorial Hospital at 1316 East 7th Street, Auburn, Indiana in conference room 303. I hope to see you there. Everyone have a wonderful day!!!!
Christie

Wednesday, March 16, 2011

Hip On Hep C Support Group: Logan's story with Hepatitis C

Logan just saying hello. Trying to see if this works to adding another blog to my page.

Tuesday, March 15, 2011

Saturday, March 5, 2011

logan

hi my name is Logan and I have Hepatitis C and if you want to talk to me about what you are feeling then go ahead. Well I am going to tell you about me life ok. So when I got detected with it I was a baby so I really didn't know about it because when you are a baby you don't know what's happens with you at that time. so when I knew I had it I was sad and when I had my first shot I was out of it and when my mom picked up my arm and let go of it it dropped back to the ground so my mom called the ambulance came to get me and toke me to the hospital and put i.v. in my arm and my mom could came back to the room until they were all done with me and ever thing like that. My mom took pictures of me when she was back there and if you were wondering how I knew about all this my told me about it when we came home from the hospital. well I have to go so if you what to you came talk to me at all.

Friday, March 4, 2011

Well I am here with a heavy heart today!

Today I started two new pages on here that really pulled at my heart when I was writing them down. I live the life everyday. But to put them down on paper for all to see was really hard. I love my girls and I really think them being able to reach out in their own way about their own feelings will be good. They both need it. Don't get me wrong I am here for them daily no matter what the day brings. But them having an escape to tell their feelings is got to be good. And I am sure that there is alot of other children out there that need them too. So to all that read this for you to help me get the website out would be really appreciate. Thank you so very much. The only way this site will get going is by word of mouth. and I need lots of that. Please help me reach the young out there needing someone to talk to.
Well enough for now. My knee is killing me since my knee surgery and I am going to go to sleep. I will write more tomorrow. And work on getting the site out myself. Everyone have a great night!
Christie

Wednesday, March 2, 2011

Still here

Well I have been out of commission since last Wednesday. I had my left knee completely replaced. So I have been out of it for the most part. I have put a call into my daughters liver doctor to see about the starting of a website with live chat for the children of Indiana who have Hepatitis C started. I really feel like starting this for children with this disease and I also still am in the thinking and starting a website with live chat for those children with parents with Hepatitis C started too. I really need idea's if anyone has them. I also need a big prayer for these idea's also. I need the right website owner to say yes we will allow you to start two sites free. And really it could be the same site with two different links on it. I am kinda stuck as to who to contact to fulfil these needs. I am sure it can happen and I am sure there is so many kids out there that need these sites to be there for them. I will just have to start by calling sites to see if they will fulfil our needs. So wish me luck. With your faith I am sure it can happen. Everyone have a wonderful day.
Christie
March 2, 2011

Saturday, February 19, 2011

Support Group Febuary 2011

Well group was great I learned alot of new stuff and I think others did as well. It was like a bunch of friends sitting around the dining room table having coffee telling our life stories and getting a few good laughs. There was hope in the eyes of some and still that long away site in one. I want to always come out of group with everyone hopeful and happy. But I know in reality that that may not always happen. I will never stop trying though. The whole idea of starting and running this group has been a big God inspired thing in my life. It has given me meaning and drive to find a cure for this disease. I started it not even having a clue of how to run anything like a group of any kind. But I have learnt alot in the last 6 years. Heck it might even be 7 years. Time has just flown by and some memory too. (o: I knew there were others out there that needed a place to come to be able to be with others who knew exactly what they were going through to be able to meet together and become one so to speak. Weather there is only one person or ten just being able to be there for them is fulfilling to me. I see such hope in their eyes at time that it only makes me stronger in my walk with Hepatitis C. I want to only make the group grow and grow because I know that there is many and I mean many more out there who have this disease that need a group. And I know that there is alot more out there then the ones that come to group because I have talked to them on the phone and they are still afraid of the stigma on the disease that they do not want anyone to know who they are. So they suffer silently alone. It just hurts my heart to have this happen. And not only is there those who will not come to group there is so many of the people out there that do not even know that they have it. Because as I have learnt in time studying this disease that some go on without being detected. Some only find out by donating blood. They do not suffer from any of the systems that some of us do. Like the flu like systems that can at times be so awful they keep you in bed feeling to tired to move. Or some do not find out that they have it til their Liver is in full blown Cirrhosis. I really want to see the government make it a mandatory thing for everyone to get tested yearly for Hepatitis C. So we are not losing so many people to Liver failure. Passing that bill will take some time I am sure but I will forever try to work on it. Even if I have to go one state at a time. In group last night I found a couple of needs that also need to be met. One Like I think I have said in past blogs. My 12 year old daughter who also has Hepatitis C ( contracting it during childbirth ). Well I think we need a support group for children suffering with Hep to have a place for them to go and connect. Maybe this would have to be a website chat room based group. But the need is out there. So that is something else I am going to work on. Anyone who has input please post it. Also I think there needs to be a support group started for those children who parents are positive with Hepatitis C. To go and connect as well. So there is something else I am going to work on. Well I will close for now.
Everyone have a great day! And remember to be happy in the moment because we do not know when and if the next moment will be given to us.
Christie

Sunday, January 30, 2011

Need Donation Money for this years Indiana's Annual HepFest. Please!

I am trying to round up money for this years HepFest festival. We are only funded by the public and we are in great need of help! We are a 501c3 organization so your donation is tax deductable. We are trying to reach the $2000.00 dollar mark. That helps us with getting our speakers, food and other supplies needed to put on a productive event. This event is to have a day for all those suffering with Hepatitis to get together and have a enjoyable event to be around others who are suffering with the same kind of terriable disease they are faced with. It is also for their families and friends too. But a great big part of this event is to educated the public! We need to get the word out to the public about this disease to help them understand what it is and how it can affect others and possible themselves. It is to also help them to not put such a stigma on something that is not a cotty factor but a fact real people with real disease's have to face!!! So please if you find it in your heart to give. You may contact me at 260-927-8180 or email me at ladytruckr1962@mediacombb.net . Hope to hear from you all soon. Everyone have a wonderful day!!!
Thank you!
Christie Soaper

Thursday, September 13, 2012

Sunday, January 30, 2011

Tuesday, January 25, 2011

Monday, January 24, 2011

Tuesday, March 22, 2011

Sunday, March 20, 2011

Friday, March 18, 2011

Wednesday, March 16, 2011

Tuesday, March 15, 2011

Saturday, March 5, 2011

Friday, March 4, 2011

Wednesday, March 2, 2011

Saturday, February 19, 2011

Sunday, January 30, 2011

Thank You!!!